Director of Ethics, Genomics England, UK
Natalie is responsible for helping Genomics England navigate the complex ethical challenges in advancing genomic medicine and research, and ensuring that the organisation is a trustworthy steward of participants’ data.
Prior to this she led the ‘Understanding Patient Data’ initiative based at the Wellcome Trust. Her work combined creating accessible communications, qualitative community engagement, policy and advocacy on issues of trust relating to the use of health data, especially in the development of data-driven technologies. While at Wellcome she also led the research sector Parliamentary advocacy on GDPR as it was being taken up into domestic law. Natalie was named in Intelligent Health AI’s top 50 Innovators in 2020.
Natalie has a PhD in Philosophy and previously worked on conceptual issues relating to mental capacity and decision-making.